Wednesday, July 29, 2015

Rilynn 1.5


Happy half birthday to our sassy pants! Before having Rilynn we had parenting all figured out. She would be this polite kid and we wouldn't put up with tantrums. Toys would only be in her room and our backyard would have a designated kid area. Well, the polite kid is still a work in progress. She has mastered the tantrum. It could be over anything, not getting an M and M for trying to go pee pee on the potty (she only gets one if she actually goes), she doesn't like her dinner, I tell her we don't have any blueberries... We can be really mean parents. Our no toys outside of her room is a joke. Have you seen our living room? And our backyard looks a little trashy with all of the toys... But those pre parent dreams just seem ridiculous now. 
At 18 months...
Rilynn loves- shoes, Minnie Mouse, the Wheels on the bus, climbing, wagon rides, camping, dirt, "booberries", water, and babies
Rilynn does NOT love, having her diaper changed, being tired, chicken, sharing, 
Rilynn and her buddy Audrey!
I watch a little guy named Bennett twice a week. Him and Rilynn are pretty cute together.
Grandpa and Ri on the boat
Berry eating/picking
Our favorite splash pad is Robinwood park!
Swimming with her cousins at Black Butte.
Weee!
Audrey and Rilynn playing dress up
Rilynn loves baby Jason (Audrey's brother) and has been obsessed with babies for a month. She looks at her baby pictures at least 5 times a day.
Potty talk is a big deal at our house these days. I've made up raps about peeing in the potty. What has my life come to? 

Art is fun because you get to make a mess
Swimming with Aija at Portland Golf Club
Her and Benno love each other.
First camping trip... I spy Ri Ri
Just relaxing in her dirt pit.
Do you see what I mean about the white trash backyard... At least it's not the front yard!
First ice cream cone.
Pretending to be proper. 


Who's this big toddler and where did our baby go?
But sometimes she wishes she was still a baby. 

Thursday, June 4, 2015

Latest on Rilynn's Hips

We've enjoyed our out of sight out of mind stage with Rilynn's hips, but we are getting closer to that next set of surgeries. Today I met with Dr. Roy at Shriner's. Travis wanted to come, but since he just started at his new job, I had to go alone. Dr. Roy is one of the 4 surgeons we have seen and probably the surgeon who will operate on Rilynn next. It was very informative, but hard to hear. I was pleased with myself for not completely breaking down in front of him, especially since in the back of my mind I was reminding myself that this isn't that bad, our child is alive, walking around, and has a bright future ahead of her. Many of the other parents I saw in the waiting room couldn't say all that about their children.  We got an updated X-ray that I have posted below. It showed that Rilynn's right femoral head has developed faster than her left and that she has almost no sockets on either side. Her hips are dislocated high meaning even if there were sockets to go into? It would be challenging to get them to stay in them with how high her dislocation is. So the plan... We will schedule her right hip for beginning of September. She will have an open reduction again, a femoral osteotomy to shorten the femoral head, and a pelvic osteotomy to deepen/create her socket in hopes that it gets the message that it needs to grow into a cup shape on its own. Best case scenario we do 6 weeks of the cast followed by some bracing before doing it all over on the left side with 6 weeks of casting followed by bracing. Worst case, each set of casting lasts 8 or more weeks. That was the first big pill to swallow. He said if it was possible to do both sides at the same time without disrupting the first side while working on the second he will do it, but it is a game time decision and not to get my hopes up. Last we discussed AVN, the loss of blood supply to the femur head due to the amount of time in 1 position, is over a 50% chance. This just means the possibility of more surgery in her future and possible side effects such as a limp. Second hard pill to swallow. We just got Rilynn walking independently and the look of pride on her face melts our hearts, so the thought of taking that away from her, even for a few months, is heartbreaking. But it has to be done and luckily not over the summer this time. 
Here is Rilynn's current X-ray 

Here is what they should look like
On the bright side, her feet will probably be casted this time too, so they will be still enough to do a pedicure! 
So those of you wondering when baby #2 is coming, out of fear this will happen again (now that we had 1 with hip dysplasia, the odds go up with siblings), I feel like saying never, but in reality we are not even thinking about another one until Rilynn is cast free and done with surgeries. 
We still have a few months cast free and plan to enjoy every second of it! 



Saturday, May 23, 2015

Walking!

Rilynn:
Graduated from physical therapy!  Hurray!  We will be back at it after her next surgeries and casting.  But she is doing great with her walking and we could not be more proud.

Travis:
After 7 years at DP Nicoli, Travis decided it was time to try something new and began a new career at Cintas selling first aid kits and defibrillators.

Steph:
I'm still loving staying at home with Rilynn.  I have started a few side jobs tutoring, nannying for a 13 month old boy who comes t play twice a week, and selling Jamberry nails.  Never heard of Jamberry nails?  I hadn't either; ladies you must check out this awesome product, I am obsessed! mrsbergbejammin.jamberrynails.net

Josie:
Although she still acts like a puppy, Josie turns 9 in July.

Some of our favorites from Rilynn's milestone photo shoot.  I highly recommend A Day in the Light Photography, they did an outstanding job, were easy to work with, and so reasonable.  



















Monday, May 18, 2015

Maui continued

Dancing queen 
Shopping
On the plane. No we didn't buy her own seat, but I wish we did.
Taking a break from the waves. 
Playing with Grandma

Exploring... Rilynn was on my back.
Beasties!
Back at our old stomping grounds... Grand Wailea! 
Happy hour at the condo
Piling up Dad's back. We actually wore spf 70 after burning day 1 with a 30.
Rainbow after the rain!
Back at home making rainbows out of yogurt.
Missed the beach so much we drive to Longbeach, WA.
At least it is 78 and sunny at the Club Sport pool today!